HS Variables

Variables collected in the HS PROGRESS registry: 

Patient-reported Data:

  • Demographics
    • Age
    • Sex
    • Race/Ethnicity
    • Education/Employment
    • Marital Status
       
  • HS History
    • Age of onset
    • Age of diagnosis
    • Body sites affected
      ​
  • Other Medical History
    • Comorbidities
    • Smoking/Alcohol use
    • Substance Use
    • Family History
    • Quality of Life Assessment
    • Symptom Measures
    • Medication History
    • Surgical History

Investigator-reported Data:

  • HS Physician Global Assessment (HS-PGA)
  • Hurley Stage
  • HASI
  • Lesion Counts