HS Variables

Variables collected in the HS PROGRESS registry: 

Patient-reported Data: 

  • Demographics
    • Age
    • Sex
    • Race/Ethnicity
    • Education/Employment
    • Martial Status
  • HS History
    • Age of onset
    • Age of diagnosis
    • Body sites affected
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  • Other Medical History 
    • Comorbidities
    • Smoking/Alcohol use
    • Substance Use
  • Family History
  • Quality of Life Assessment
  • Symptom Measures
  • Medication History 
  • Surgical History
 
 

 Investigator-reported Data: 

  • HS Physician Global Assessment (HS-PGA)
  • Hurley Stage
  • HASI
  • Lesion counts