Variables collected in the HS PROGRESS registry:
Participant-reported Data:
- Demographics
- Age
- Sex
- Race/Ethnicity
- Education/Employment
- Marital Status
- HS History
- Age of onset
- Age of diagnosis
- Body sites affected
- Healthcare Utilization Metrics
- Other Medical History
- Comorbidities
- Smoking/Alcohol use
- Substance Use
- Family History
- Quality of Life Assessment
- Symptom Measures
- Medication History
- Surgical History
- Patient Reported Outcomes
- Dermatology Life Quality Index (DLQI)
- Pain NRS
- Itch NRS
- Hidradenitis Suppurativa Quality of Life (HISQOL)
Investigator-reported Data:
- Hurley Stage
- HS Physician Global Assessment (HS-PGA)
- Hidradenitis Suppurativa Response (HiSCR)
- International Hidradenitis Suppurativa Severity Score System (IHS4)
- 55% reduction in International Hidradenitis Suppurativa Severity Score System (IHS4-55)
- Investigator Global Assessment (IGA)
- Hidradenitis Suppurativa Area and Severity Index Revised (HASI-R)
- Lesion Counts
- Medication Decisions
- Procedural Decisions